About Us

Raise funds. Generate awareness. Provide hope. That's what we're all about here at Working On Walking. Established in 2014, we set out to make a difference in the world of SMA through fundraising efforts and other activities that promote our cause and educate the public about this life-threatening disease. We believe that through togetherness, we can conquer anything.


WOW is a volunteer-based organization meaning 100% of your donation goes towards fulfilling our mission. By making a donation to us, you are making an incredible difference and helping thousands of people whose lives have been affected by this debilitating disease. Donations are fully tax deductible as charitable contributions.


Brief History

alyssaThe title, “Working On Walking (WOW)”, was coined by a woman named Alyssa Silva, who has SMA I, when she was only ten years old. As a little girl, Alyssa would have lemonade stands to raise money for Spinal Muscular Atrophy and had always dreamed of raising $100 for this cause. Selling lemonade at 50 cents a cup wasn't the most lucrative option; so, with a goal in mind and an incredible support system by her side, Alyssa decided to branch out and explore other ventures.

marieIn the early years of fundraising, Alyssa designed cards and calendars using her favorite colored pencils. This idea came from a woman named Marie Goodman, Alyssa's occupational therapist at the time, who saw that Alyssa had a special talent that she could use to benefit the SMA community. From this point forward, Alyssa and Marie spent most therapy sessions practicing range of motion techniques and drawing for her newly established venture, Working On Walking.

marie_and_alyssaAlyssa set out with a goal to raise $100 dollars when she started out back in 2000. And, as life would have it, $100 quickly turned into $1,000, then $1,000 turned into $10,000, and $10,000 turned into...well, you get the gist. From the very beginning, though, Alyssa realized, no matter the dollar amount raised, how important it is to fundraise and generate awareness if you want to make a difference in this world. Her cards and calendars will always serve as reminder of how it all began, and this organization will always serve as a reminder of how far we can go.